About nine migraines a month, according to a woman who claims the condition rules her life.
Delyth Jones, 32, of Ceredigion, claimed that as a result of them, she missed her children's school plays and sporting events.
Due to a perceived lack of support, a former general practitioner who was fired after being diagnosed with chronic migraines founded a nonprofit support group in Cardiff.
The Welsh government declared its dedication to enhancing services and care.
When Ms. Jones first began experiencing migraines as a teenager, the pain was "intense.".
She said, "I start to feel a little tingling behind my eye and I know I'm going to have a migraine today.
"[It's] a tremendous pressure coming from my eye and running back towards the back of my head. I am powerless to express the pain. ".
Some of Ms. Jones' migraines, according to her, can last for days.
"It has a significant impact on my life as a mother of three. I've missed out on their activities, like sporting events and school concerts, she said.
"I've developed a fear of things. worried that people won't take my word for it when I claim to have one. I feel alone.
I don't know many other people who have them, and I can't explain how I feel to others because they won't understand. ".
Ms. Jones claimed that when she sought medical attention for her migraines, she struggled with a lack of support.
"When I visited the doctor, there was no literature or suggested support groups; they were simply happy to prescribe me the medication and essentially say, "That will help you.
"I do worry about it. It governs how you live. ".
A Cardiff support group for the condition was founded last year by Dr. Anna Maclean, a former general practitioner who was fired after being diagnosed with a chronic migraine. The group now has 60 members.
Although I'm sure people are doing their best in the challenging NHS environment, there isn't much expertise in Wales, according to Dr. Maclean.
"Since the numbers are so great, I've just tried to help people, and I've set up this group with another GP.
Through the group, they are all able to connect with others who share their symptoms, reducing their sense of isolation.
"We must raise awareness of migraines. Even though it doesn't actually kill you, it definitely ends your life. ".
Although GPs can refer patients to headache clinics, more funding is required, according to Dr. Llinos Roberts of the Royal College of General Practitioners, to improve care in Wales.
The complexity, she said, lies in the variety of symptoms that people may experience in addition to the fact that migraines are very common.
There are some symptoms that are more prevalent than others, such as head pain, which is frequently on one side of the head, nausea, and vision issues. but depending on the person, these may change.
"There may be a need to increase funding to support patients in seeing specialists with a focus on migraine treatment. ".
There is still a "long way to go" to raise awareness, according to the charity The Migraine Trust.
One in ten people in the UK and one in seven people in Wales, according to its research, have the condition.
Rob Music, the Welsh government's chief executive, said, "I think there's a lot the Welsh government could do.".
"If you consider how frequent my migraine is, the effects it has, and how poorly understood it is, you will see how common it is.
"I think we strongly believe that the migraine must do what it must do to reach the current stage of menopause. ".
According to the Welsh government, migraines have "debilitating effects.".
The NHS and we are committed to improving care, services, and access to services, the statement read.
It stated that a headache toolkit had just been released to assist front-line clinical teams in identifying and strategizing patient care.
